Frustration

Some days diabetes just gets the better of you.

Tonight I was feeling motivated and was looking forward to working out. After picking out a cute outfit and lacing up, even setting a temp basal (I usually set mine to 40%), I was ready to hit the treadmill and work up a sweat!

After arriving I unpacked all my gear: headphones, towel, water bottle, headband.. The last thing was to check my sugar for the final go ahead. So I bust out my handy Accu-Check Mobile and see a 4.4 glaring back at me. Crap. I quickly check my pump to see if there is any active insulin on board. To my disappointment 2.25 pesky units are still hanging around, threatening a low any minute now.

I riffle through my bag to see what hypo snacks I’ve brought with me and find a slightly soggy packet of sultanas. I quickly shovel them down and take a seat on the gym’s couches.

I am now faced with the reality that I will not be working out tonight. Despite my determination, doing so would undoubtedly result in multiple low’s during/post workout and dwindling snacks sent me begrudgingly back out the door.

For me, the most frustrating part was that I had to sit on a couch, watching people with perfectly good pancreases shed their unwanted calories while I was forced to consume more.

My goal this week is to work on resilience, so diabetes, listen up: you will not get the better of me!

Advertisements

NDSS and Testers

Just got to love the NDSS customer service.

I placed an order for a 6 month supply of insulin pump consumables (IPC) and a 3 month supply of test strips on Tuesday afternoon. Thursday morning and it’s here!

I use the Accu-Check Mobile tester which is a strip-free tester. It’s so convenient and easy. Testing hasn’t felt like a chore since I made the switch just over a year ago. The updated version is pretty nice too. As my Type 1 Diabetic cousin put it.. “The old one is like a clunky old Nokia, this new one’s like the iPhone of testers”. He was later convinced to trade in his Optium Xceed for the shiny new tester.

I would definitely recommend the tester to anyone who is sick of accumulating billions of bloodied test strips! And if you live in Australia, Accu-Check are offering a full cash-back promotion so you can pick it up for free. What are you waiting for?

Update

Met with the surgeon yesterday and the operation is booked for the 4th of October. Thankfully I won’t be missing my field camp and much of the semester. The procedure is called a laproscopic pyeloplasty, and this guy is meant to be the best in the city. He’s performed hundreds and has a success rate of 98%, plus he’s a really nice guy.

Image

In other news, my sensor arrived at the diabetes educator today and they called to make a time for me to come in and get set up! It will have to wait til after recovery but I am so excited!

Surgery

Well they finally nailed down what the problem was and how they are going to fix it. PUJ obstruction  you need surgery, asap.

Thankfully it’s only keyhole and it won’t be such a long recovery as it would’ve been if they were doing a big cut.

Still, with uni and everything that’s going on.. I don’t know how I am going to cope. Will I have to miss the rest of the semester? Will I even get to do exams? Will I have to repeat the units? Oh boy.. Everyone keeps telling me that my health is most important but it’s hard when you’re so deep into the semester and suddenly have to drop everything..

CGM

A couple of days ago I wrote about how I was having trouble getting booked in for my CGM one-week trial (https://storiesoftype1.wordpress.com/2012/09/10/admin/), but last night this email pops up from my DE:

“Medtronic CGM offer”

For $375 you can get a CGM starter pack including: Minilink Transmitter, Insertion Device and 5 Glucose Sensors. (The Minilink Transmitter alone would normally cost above $1200) Plus we’ll throw in a free set of steak knives! Uh.. I mean.. Free Contour blood glucose meter that will bluetooth your blood glucose readings directly to the insulin pump, and generally be amazing.

Well well well, after having so much trouble finding an appointment for a trial looks who’s come crawling back to entice me with this deal. Do I cave in and get it? Of course I bloody do! It’s a downright steal!

The process is already in motion. I emailed her right away (after a quick chat with mum) and said yes please! I am very very interested! Got a reply nice and early this morning with the forms (and payment options) which have now been filled out and sent off to be faxed.

This is good news!

Not only do I get to try out the sensor, but I get to keep the transmitter which means anytime I feel like purchasing sensors (for special occasions, exams, when I’m sick) I can! They come at a hefty price might I add, $75 a pop, but at least I have the option should I need it.

And that’s some great peace of mind.

This offer from Medtronic is only for a short time, please contact your Diabetes Educator if you wish to take advantage of this limited offer (Australian Residents Only). http://www.medtronic-diabetes-me.com/product-information/paradigm-veo/continuous-glucose-monitoring.html

Admin

Trying to get an appointment with said Diabetes Educator for my Continuous Glucose Monitoring (CGM) week-long trial is proving to be an arduous task. Fully booked up til November, great.. Time to look for a temporary replacement educator perhaps?

Went to see my doctor this morning and am now in the process of creating a ‘team’ out of my endocrinologist (endo) and a specialist urologist-guy that can get this kidney thing under control.

With all the calls, bills, paperwork and scheduling I’ve been doing, I’m starting to feel like I’m running my own personal health clinic for my body. Just call me the Secretary dear..